On my mind…

Written May 2019

I’m back at the library where I used to come and write while my oldest had academy one afternoon a week. Someone tried to blow it up in the fall in our privileged, white person town: no joke. It’s been closed while they worked on repairing the car parkade and cleaned each and every thing in the whole building. It feels shiny and new and people aren’t used to it being open again. The parkade is deserted and I have no problem finding a reading cubby where I open my computer and try to think of some words to write. I wonder how many people are scared it may happen again, even though the white male who brought the bomb died. I think it’s important for me to point that out because I know many people when they think of bombing think about minority immigrants. This man was no immigrant and he was no minority: he grew up around here, on a farm I think. Anger and hatred and lack of connection and empathy don’t often care where you grew up, in fact I would argue they are more prevalent in a privileged group who considers themselves to be persecuted.

I’m doing my morning pages in my journal still most days and most days those are all the words I have time to get down. Midlife is beautiful and glorious and also busy. We live somewhere where two incomes are certainly nice to have, if not almost necessary so I’m trying to cram as much paid work in as I can, while also homeschooling three kids, running another business and managing things like flooding basements, broken wells and getting groceries. I don’t work anywhere close to full time for pay - more like 1/5 time when things are really busy but all the work I do not for money, especially choosing to homeschool add up, especially with a husband who travels extensively for work.

Things that are on my mind right now are things I don’t really want to share about on the internet. What it’s like to have a house full of kids turning into teenagers, what it is like to raise a competitive athlete, how our life seems bananas but yet I cannot imagine it any other way. How to educate my kids for high school. How I don’t want my kids to be a part of teen cell phone culture and they aren’t but then also the effects of them not being a part of it. The positive and the negative. I’m wondering about how to raise younger siblings who feel just as accomplished (read loved) when your oldest is incredibly driven. On how this morning I found lily beetles for the first time in my yard and how climate change means two of my apple trees and my one plum didn’t get any blossoms on them at all. At how I feel sick at the amount of plastic we are throwing away yet I still really want to eat berries and go for a slurpee without having reusable cups on us. How girls are almost expected to post ridiculous photos of themselves online and how my middle dances with girls older than her and how I’m not sure how I feel about that these days. The difference between 11 and 13 can be extreme. How I feel guilt that some of my kids seem permanently altered by the fact that I had cancer during their childhood. If there is anything I can do about it. On my incredible sadness at seeing the actions of my sons black teammates being more likely to interpreted as aggressive or hostile or with intent than my white, blond, blue eyed son’s are and how I don’t know how to change it or the many other discriminations his minority teammates face that he doesn’t.

On my mind is how when the trees turn from all brown to the first tinges of chartruse green anything is possible. How growing flowers makes you feel like you are doing a tiny bit to save the world, even if logically it makes no sense. How at this point I am actively doing less to save the world than I have at any other point in my life and how just for now I am not trying to change that. Wondering if that makes me apathetic, privilidged or just in need of a bit of rest.

Three Years

I was planning on writing about something else here today but my husband shared this picture that popped up in his memories today. Three years ago today I was told for the first time the tumor that was removed from my appendix in what going into it we thought was a routine appendectomy was cancerous.

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To my husband I know this picture means one thing. The devastation and fear hearing your wife call you and say ‘the tumor wasn’t benign’ is evident in his face. So is the shock. The difficulty of being a ‘fixer’ and faced with a situation you can’t fix.

For me I see how alone I feel and the beginnings of trauma evident on my face. To make a very long story short I had been told (incorrectly) a few weeks before this that all of my pathology reports came back clear. I went to my follow-up appointment with my gynecological oncologist solo believing it was just routine follow up. (I now know this pro tip: if all your tests are benign, you get cancelled from seeing oncologists. If your appointments stand, there are 100% still concerns.)

There I was sitting on the exam table expecting polite happy chit chat about how lucky I was and instead, having her tell me with great compassion the plans for follow-up surgery and more referrals to different oncologists. I could not even process her words and therefore, her compassion fell on deaf ears. I couldn’t comprehend I needed it. I told her I had been told my tests were benign so she went and printed out my lab reports and read them to me. She asked me if I had any questions and if I was alright, again two things I couldn’t even begin to process. I took the lab reports out of her office in my hot little hand. I somehow took the elevator down, got down to my car in shock and tried to call Aaron. He was in a meeting so I called my dad. I’m not sure what I hoped to accomplish as I couldn’t even explain anything properly but I needed to not be alone. I needed to be heard. I cried and then tried to get it together enough mentally to drive home safely to my kids.

When I look at this photo with the shock so evident I see there are a few things that day’s Leah who just heard life altering news had no idea about yet.

  1. How serious my situation was. On this day I had zero comprehension about what the effects of having a cancerous tumor that spreads by mucus exploding your appendix and therefore possibly exposing literally everything in your abdominal cavity to cancer were. (Just do a quick scan of all your organs that are housed there to consider the possibilities. On this day, my mind couldn’t even comprehend.) I had no idea what a HIPEC was or a Sugerbaker Surgery was or why someone would need one. I had no idea some cancers don’t respond to IV chemotherapy. I had no idea how many appointments I would have and where this would end. I had no idea cancer could cause trauma.

  2. That I would get a miracle. Yes it’s true - by some combination of modern medicine, prayers of so many and alternative medicine (Aaron calls this hippy sh*t) all rolled together by God’s grace it happened. Three years later, two and a half of these with ongoing NED (no evidence of disease) and I’ve come to some acceptance of it after a few years of secretly being afraid the tests were just missing things. Being healthy after cancer is sometimes hard to accept or talk about. Everyone you know is so, so happy for you but it’s hard for you to believe it for a long time. You have developed a dysfunctional relationship of lack of trust with your body. Your brain has wired on a path of being vigilant and expecting the worst to protect you from more shock. You know not everyone gets so lucky. You don’t feel worthy of the outcome. All of this still makes me incredibly emotional in a way I can’t really explain and likely always will.

  3. One day I would be grateful for this experience. I wake up everyday grateful to be alive and that is not hyperbole. I wake up and know I am always held by a creator who loves me, especially in the worst. I wake up and know in my soul in a way I cannot explain that God will work all things to good, even if it is a good I cannot understand or agree with. I have increased compassion that today is the day others are hearing their news that is equivalent to cancer or working through their equivalent of the unknown or treatment or working through their healing (frankly the hardest part). I don’t sweat the small stuff. I see the absolute beauty and joy of ordinary life. You can tell me your utter heartbreak and it doesn’t scare me away. I learned to sit and share space comfortably with hard stuff. I know these are gifts not everyone gets and I am thankful I have them.

I share this just to say if today is a day you need it: here is some hope. Here are some things that three years later I can share.

Sometimes things may get even darker before the light comes. Survive it one day at a time. Remember even if it feels like it you are not alone. You are loved. You are beloved. You are cherished. Take all the help offered: things you once scoffed, things you don’t believe in, things you do, casseroles. Make and show up to your appointments.

Your miracle may be of the kind that comes by hard work, and showing up, and forgiveness. Your miracle may be of the kind that comes of letting something that was once precious go. Your miracle may be of the kind you can share publicly, or not. It may come in one fell swoop or it may come in one million tiny, painful steps.

It will probably take longer than you think to have eyes to see it or the ability to believe it.

One day, even if it seems impossible today, you will wake up happy to be alive.

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