pseudomyxoma pertionei

So...

(Originally written for facebook) I've got some not awesome news and that is that I have cancer. I haven't been very public about this yet as I wasn't sure until recently where this was headed (and hoping it would just be a little blip) so I wasn't feeling the desire to make it 'facebook public' so to speak. The world feels a little crazy right now and the last thing I would want to do is add to people's feelings of overwhelm or take away from anything else currently going on. Instead my intention is to hopefully increase compassion and connection for whatever is going on in your own life. I tend to have a lot of thoughts about this right now so if you are interested here are some of them.

As it has become apparent this won't be the little blip I hoped, I still debated about keeping this very quiet and asking people not to share but there were two issues with that. The first very practical one is my husband is not a private person and a part of how he lives is being very open. Therefore I want to be somewhat open here too so people who know both of us aren't only hearing things from him and people who I am close to but he isn't aren't left in the dark.

The second issue is that we live in an interesting time of facebook and instagram and all other sorts of social media. Overall truly I love social media - often I think it spreads joy and hope and connection and provides a place to get some empathy or learn about something new, support a cause you are passionate about or heck, even just good suggestions for what to read next.

However, I am getting closer to forty and as I have aged this has become a life truth: hard things happen to everyone. Everyone you know has either recently had or is having or will in the future be having a hard time. This is just a part of life, there aren't any exceptions I have observed, just as I believe joyful things happen to everyone as well, if we can have the eyes to see them.

Now social media doesn't always make it look that way because hard things are often very private, as private or more private than the things that bring us the utmost joy. Here is why: perhaps your hard time has to do with your child or your partner or your sibling. Perhaps it has to do with finances or health issues we find embarrassment around or our childhoods. Maybe it is something you feel shame about so isn't safe to put out there for everyone's input. These are things we can talk to our most inner circle about but they are not things most of us talk about online. Because they aren't just ours to tell and most of the people in our online worlds don't need to be privy to the details. The details cannot make sense outside of a close relationship context or it just simply isn't a safe subject to open up. Maybe we think that because our hard times seem easy compared to others they don't count so we keep quiet. This of course is utter crap, hardness is not a contest and empathy, as a woman I love says, is not a nine piece pie. There is enough to go around. So because of our respect and concern for others involved (including our very own selves) in our hard stories, they often don't show up on social media and we are stuck in a place where it may appear that so few of us are actually ever having hard times.

In fact the hard things can sometimes be so absent from social media that we can sometimes start to think we are the only ones going through struggles or at least the struggles that aren't on the nightly news. We can sometimes even start to feel jealous and angry and resentful of people who look like they have it all together.

So I decided to share as a reminder that whether it is out there on social media or not, if you are having a hard time you are not alone. You are loved. You are cared for. I hope you have people taking good care of you. You are not the only one with shit blowing up everywhere and living with fear and worry alongside any joy and hope. I know you care about things outside yourself and want to change the world to be a better place, no matter how much energy you have to give to that right now or not.

If you are not having a hard time right at this very instant, I hope this will be a reminder to be compassionate to others because we can't be sure of what they have going on. A reminder that while lots of us have good lives, none of us have perfect lives. A reminder to be gracious to others because we are all still learning and stress often causes us to not do things to the standard which we would prefer. To be happy and celebrate as much as possible other's healthy boundaries or joys or celebrations that they do share because who knows what else they have gone through, aside from what you are seeing.

As for me I have appendix cancer (one in a million so likely you haven't heard of it or known anyone with it before.) If you are interested in the more nitty gritty details of that I wrote a post of the history and where things are at currently on my blog: www.leahcolbeck.com  Otherwise I'm super grateful that I know so many people who believe in taking good care of the people around them - whether we know of any hardship they may be having or not because this is what the world needs. I will also say in advance I appreciate all the love and prayers and am so thankful for that.

Photo because I still believe God made this world so beautiful and full of love.

Hope (surprises part III)

Advent came so early this year and I have never been so glad for it. In my faith tradition and many other Christian ones, advent is the season before Christmas when we lean into the darkest part of the year and light candles, reflect and take action for hope, peace, joy and love while we wait for Jesus to come.

This past Sunday almost a week ago already started the week of hope. There are so many reasons we need hope aren't there? Maybe it is social media, or the election in the US and all that has brought to light or just my own sad heart but the world seems full to overflowing with tragedies. It can be hard for me not to feel overwhelmed and powerless and paralyzed to do anything.

Personally to say the least I've had some challenging weeks. A week or so before advent began I told a friend the day after I googled about my tumors - when I was trying to hone in on what I needed I said - 'it's hope I just need some hope'. It wasn't an official prayer and yet there it was. I had no idea how to find it. I was hopeless.

That night another friend stopped by unexpectedly and in the midst of my tears she told me she had been up all night researching and this wasn't why she came over but she felt after listening to me she had to share some more positive statistics than the ones I had read. There it was - hope. Someone prayed for me over the phone. Hope. My husband bought me an encouraging and honest and positive book about surviving cancer. Hope again. A friend sent me a gorgeous piano piece she had been playing in prayer for me. Hope. Everyday someone new tells me they are praying for me. People are open and honest and real. People send you funny and cute messages and talk to you about normal things. Hope, hope, hope.

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I've written this before and it is still true. When I think about what I hope for it’s this: wholeness for people and planet. Kingdom come. I think this is why Barbara Kingsolver says the most you can do with your life when you have figured out what you hope for is to live inside that hope. ‘Not admire it from a distance but live right in it, under it’s roof.’

Ann Voskamp  calls us the Esther Generation, reminds me that I am living in the palace and that God has put me here for such a time as this. The hurting world needs us and aren't these kind of the same thing? Find what we hope for and live right there putting some skin into the game?

When my eyes are opened I look and this is what I see: hope. Instead of overwhelmed inaction I see people living nitty-gritty with what they believe. I see them sponsoring refugees and listening to a crying friend over coffee and getting up hour after hour after hour with their sick babies.  I see them picking up groceries and helping move and also giving grace when things are too stretched to contribute beyond your own family or your own self. I see people seeing others, and telling them thank you and buying fair trade and donating money and demonstrating compassion.

There it is: prayer answered.

 

Surprises Part I  and Surprises Part II