Everyday holy

Hope (surprises part III)

Advent came so early this year and I have never been so glad for it. In my faith tradition and many other Christian ones, advent is the season before Christmas when we lean into the darkest part of the year and light candles, reflect and take action for hope, peace, joy and love while we wait for Jesus to come.

This past Sunday almost a week ago already started the week of hope. There are so many reasons we need hope aren't there? Maybe it is social media, or the election in the US and all that has brought to light or just my own sad heart but the world seems full to overflowing with tragedies. It can be hard for me not to feel overwhelmed and powerless and paralyzed to do anything.

Personally to say the least I've had some challenging weeks. A week or so before advent began I told a friend the day after I googled about my tumors - when I was trying to hone in on what I needed I said - 'it's hope I just need some hope'. It wasn't an official prayer and yet there it was. I had no idea how to find it. I was hopeless.

That night another friend stopped by unexpectedly and in the midst of my tears she told me she had been up all night researching and this wasn't why she came over but she felt after listening to me she had to share some more positive statistics than the ones I had read. There it was - hope. Someone prayed for me over the phone. Hope. My husband bought me an encouraging and honest and positive book about surviving cancer. Hope again. A friend sent me a gorgeous piano piece she had been playing in prayer for me. Hope. Everyday someone new tells me they are praying for me. People are open and honest and real. People send you funny and cute messages and talk to you about normal things. Hope, hope, hope.

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I've written this before and it is still true. When I think about what I hope for it’s this: wholeness for people and planet. Kingdom come. I think this is why Barbara Kingsolver says the most you can do with your life when you have figured out what you hope for is to live inside that hope. ‘Not admire it from a distance but live right in it, under it’s roof.’

Ann Voskamp  calls us the Esther Generation, reminds me that I am living in the palace and that God has put me here for such a time as this. The hurting world needs us and aren't these kind of the same thing? Find what we hope for and live right there putting some skin into the game?

When my eyes are opened I look and this is what I see: hope. Instead of overwhelmed inaction I see people living nitty-gritty with what they believe. I see them sponsoring refugees and listening to a crying friend over coffee and getting up hour after hour after hour with their sick babies.  I see them picking up groceries and helping move and also giving grace when things are too stretched to contribute beyond your own family or your own self. I see people seeing others, and telling them thank you and buying fair trade and donating money and demonstrating compassion.

There it is: prayer answered.

 

Surprises Part I  and Surprises Part II

Surprises part two

(Just a heads up I'm going to talk about what it was like to find out I have either pre-cancerous cells or cancerous cells - the doctors aren't sure yet. It isn't very light reading so you may not want to read it. My main intent is to give a sense of solidarity and normalcy  to anyone else dealing with this type of news. Also I'll write more this week about how I'm doing so much better now.) img_6272

 

One thing no one tells you who has had to deal with oncology (and that you couldn't imagine even if they did) is that when a doctor tells you they found a tumor during what you thought was a routine appendectomy, is how often you think about dying.

At first you hope and pray benign, benign, benign. You cling to that in between imagining your own funeral and your family without you. When you find out no, not benign, the fears come even faster because you are not ready to leave this beautiful life. In a bizarre turn of events at age 37 your body has cells that (whether the doctors are unsure until your next surgery if it is technically considered cancer yet or not) if left alone, if you carry on the same path, will kill you.

When oncology calls you put your head between your knees and breathe because you notice you are hyperventilating and trying not to have a panic attack. Also you are nauseous everyday and you wonder if it is the growths spreading. (It's one of the questions they keep asking you, are you nauseous? Were you experiencing nausea?) Also you still have some post-surgery abdominal pain, is that normal at this point? And you are tired. All of it in your mind, cancer, cancer, cancer. You lose twelve pounds and people who don't know tell you you look great.

You avoid people who can't control their own panic because you have absolutely zero emotional reserves for anyone other than your very own people in your very own walls and you tell yourself you are barely holding your own shit together although truthfully, during this time you really aren't. At times you are mad you are a person who needs help, who needs empathy.

You don't tell anyone about how many times a day you picture life without you in it because you realize it is totally crazy town up inside your head, but also because no one imagines their loved one will be the one that actually dies tragically. You think longingly about when you had days, weeks, months, years where you didn't think about dying, not even one little time.

Then maybe the worst day, you google. If you are reading this and you are recently diagnosed please listen to what everyone says. For the love of all that is good and holy don't google. Don't google. Don't google. You will read things you cannot forget even though you will really, really want to. You totally loose it and spend the whole day weeping, absolutely sure you will not live to see your children move out.

You consider the progression of pleading in your mind. Please let the tumors be benign. Please let me not need chemo. Please let me if I need chemo that there be one that works. Please let me live at least long enough for my kids to be okay.

You also joke, you joke a lot because this helps take away from having tears spring up unexpectedly at bill paying, carving pumpkins or putting your kids to bed. When you get calls for test appointments you didn't know you needed, you joke that if you don't have cancer already, after this many CT's you will. There is also a lot of numbing with facebook and with television and the election because you just need some non-cancer distraction every day. You feel thankful for this, but also a bit guilty because thinking about death gives you an awareness that you really should be making the most of your days.

In between all this you hug your kids, you hug your husband, you list your gratitude's. And pray, yes you don't really stop praying although it would take God to make sense of all the anxious, frantic, disjointed thoughts coming from your mind. Thankfully that is what God is for. Someone who has been through a lot and has a beautiful faith and spirit reminds you that when you don't have words the Holy Spirit will pray for you. You count on this. You ask other people to pray for you because you know they are more coherent and rational and also they love God and they love you and prayer feels like the best gift anyone could give right now. You borrow some of the faith of everyone you know because this really is the only thing getting you through.

 

You can read Surprises Part I here